Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study
Identifieur interne : 001931 ( Main/Exploration ); précédent : 001930; suivant : 001932Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study
Auteurs : Amy Stertun Geirdal [Norvège] ; Solfrid S Rgjerd Saltnes [Norvège] ; Kari Storhaug [Norvège] ; Pamela Sten [Norvège] ; Hilde Nordgarden [Norvège] ; Janicke Liaaen Jensen [Norvège]Source :
- Quality of Life Research [ 0962-9343 ] ; 2014.
Abstract
The relationship between quality of life, psychological distress, and orofacial syndromes in children and adolescents has been reported in several studies. However, little is known about differences in psychological distress and quality of life among adults with different orofacial conditions. Therefore, the aims of this study were to examine and compare these factors among three groups of adults affected by Treacher Collins syndrome (TCS), cherubism, and oligodontia/ectodermal dysplasia (ED).
We included 11 individuals with TCS (mean age 46.9, SD 12.9 years), 15 with cherubism (mean age 50.3, SD 16.8 years), and 49 with oligodontia/ED (mean age 30.7, SD 15.6 years). The respondents completed questionnaires related to psychological distress and quality of life.
The oligodontia/ED group had a significantly higher level of anxiety and worse mental health-related quality of life than both the TCS and cherubism groups. Adults with TCS reported the highest level of depression, and the lowest levels of overall quality of life, well-being, and physical health-related quality of life. The cherubism group displayed the best overall quality of life, well-being, and mental health.
Psychological distress and quality of life differed in various orofacial conditions. This study provided insight into these aspects that may contribute to improved care.
Url:
DOI: 10.1007/s11136-014-0826-1
PubMed: 25344415
PubMed Central: 4366539
Affiliations:
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study</title><author><name sortKey="Geirdal, Amy Stertun" sort="Geirdal, Amy Stertun" uniqKey="Geirdal A" first="Amy Stertun" last="Geirdal">Amy Stertun Geirdal</name><affiliation wicri:level="3"><nlm:aff id="Aff1">Faculty of Social Sciences, Oslo and Akershus University College of Applied Sciences, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>Faculty of Social Sciences, Oslo and Akershus University College of Applied Sciences, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Saltnes, Solfrid S Rgjerd" sort="Saltnes, Solfrid S Rgjerd" uniqKey="Saltnes S" first="Solfrid S Rgjerd" last="Saltnes">Solfrid S Rgjerd Saltnes</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey=" Sten, Pamela" sort=" Sten, Pamela" uniqKey=" Sten P" first="Pamela" last=" Sten">Pamela Sten</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Nordgarden, Hilde" sort="Nordgarden, Hilde" uniqKey="Nordgarden H" first="Hilde" last="Nordgarden">Hilde Nordgarden</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Jensen, Janicke Liaaen" sort="Jensen, Janicke Liaaen" uniqKey="Jensen J" first="Janicke Liaaen" last="Jensen">Janicke Liaaen Jensen</name><affiliation wicri:level="3"><nlm:aff id="Aff3">Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">25344415</idno><idno type="pmc">4366539</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4366539</idno><idno type="RBID">PMC:4366539</idno><idno type="doi">10.1007/s11136-014-0826-1</idno><date when="2014">2014</date><idno type="wicri:Area/Pmc/Corpus">000D55</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000D55</idno><idno 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sort="Geirdal, Amy Stertun" uniqKey="Geirdal A" first="Amy Stertun" last="Geirdal">Amy Stertun Geirdal</name><affiliation wicri:level="3"><nlm:aff id="Aff1">Faculty of Social Sciences, Oslo and Akershus University College of Applied Sciences, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>Faculty of Social Sciences, Oslo and Akershus University College of Applied Sciences, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Saltnes, Solfrid S Rgjerd" sort="Saltnes, Solfrid S Rgjerd" uniqKey="Saltnes S" first="Solfrid S Rgjerd" last="Saltnes">Solfrid S Rgjerd Saltnes</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey=" Sten, Pamela" sort=" Sten, Pamela" uniqKey=" Sten P" first="Pamela" last=" Sten">Pamela Sten</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Nordgarden, Hilde" sort="Nordgarden, Hilde" uniqKey="Nordgarden H" first="Hilde" last="Nordgarden">Hilde Nordgarden</name><affiliation wicri:level="3"><nlm:aff id="Aff2">TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Jensen, Janicke Liaaen" sort="Jensen, Janicke Liaaen" uniqKey="Jensen J" first="Janicke Liaaen" last="Jensen">Janicke Liaaen Jensen</name><affiliation wicri:level="3"><nlm:aff id="Aff3">Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo, Norway</nlm:aff><country xml:lang="fr">Norvège</country><wicri:regionArea>Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author></analytic><series><title level="j">Quality of Life Research</title><idno type="ISSN">0962-9343</idno><idno type="eISSN">1573-2649</idno><imprint><date when="2014">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Purpose</title><p>The relationship between quality of life, psychological distress, and orofacial syndromes in children and adolescents has been reported in several studies. However, little is known about differences in psychological distress and quality of life among adults with different orofacial conditions. Therefore, the aims of this study were to examine and compare these factors among three groups of adults affected by Treacher Collins syndrome (TCS), cherubism, and oligodontia/ectodermal dysplasia (ED).</p></sec><sec><title>Methods</title><p>We included 11 individuals with TCS (mean age 46.9, SD 12.9 years), 15 with cherubism (mean age 50.3, SD 16.8 years), and 49 with oligodontia/ED (mean age 30.7, SD 15.6 years). The respondents completed questionnaires related to psychological distress and quality of life.</p></sec><sec><title>Results</title><p>The oligodontia/ED group had a significantly higher level of anxiety and worse mental health-related quality of life than both the TCS and cherubism groups. Adults with TCS reported the highest level of depression, and the lowest levels of overall quality of life, well-being, and physical health-related quality of life. The cherubism group displayed the best overall quality of life, well-being, and mental health.</p></sec><sec><title>Conclusions</title><p>Psychological distress and quality of life differed in various orofacial conditions. 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Sprecher</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Haas, Bk" uniqKey="Haas B">BK Haas</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Akram, Aj" uniqKey="Akram A">AJ Akram</name></author><author><name sortKey="Jerreat, As" uniqKey="Jerreat A">AS Jerreat</name></author><author><name sortKey="Woodford, J" uniqKey="Woodford J">J Woodford</name></author><author><name sortKey="Sandy, Jr" uniqKey="Sandy J">JR Sandy</name></author><author><name sortKey="Ireland, Aj" uniqKey="Ireland A">AJ Ireland</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Mehta, U" uniqKey="Mehta U">U Mehta</name></author><author><name sortKey="Brunworth, J" uniqKey="Brunworth J">J Brunworth</name></author><author><name sortKey="Fete, Tj" uniqKey="Fete T">TJ Fete</name></author><author><name sortKey="Sindwani, R" uniqKey="Sindwani R">R Sindwani</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Anweigi, L" uniqKey="Anweigi L">L Anweigi</name></author><author><name sortKey="Allen, Pf" uniqKey="Allen P">PF Allen</name></author><author><name sortKey="Ziada, H" uniqKey="Ziada H">H Ziada</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Norvège</li></country><region><li>Østlandet</li></region><settlement><li>Oslo</li></settlement></list><tree><country name="Norvège"><region name="Østlandet"><name sortKey="Geirdal, Amy Stertun" sort="Geirdal, Amy Stertun" uniqKey="Geirdal A" first="Amy Stertun" last="Geirdal">Amy Stertun Geirdal</name></region><name sortKey=" Sten, Pamela" sort=" Sten, Pamela" uniqKey=" Sten P" first="Pamela" last=" Sten">Pamela Sten</name><name sortKey="Jensen, Janicke Liaaen" sort="Jensen, Janicke Liaaen" uniqKey="Jensen J" first="Janicke Liaaen" last="Jensen">Janicke Liaaen Jensen</name><name sortKey="Nordgarden, Hilde" sort="Nordgarden, Hilde" uniqKey="Nordgarden H" first="Hilde" last="Nordgarden">Hilde Nordgarden</name><name sortKey="Saltnes, Solfrid S Rgjerd" sort="Saltnes, Solfrid S Rgjerd" uniqKey="Saltnes S" first="Solfrid S Rgjerd" last="Saltnes">Solfrid S Rgjerd Saltnes</name><name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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